The post holder will act as the clinical expert and professional resource for children and young people with Sickle Cell Disease and Thalassaemia, their families and carers, and the multidisciplinary team involved in their care.
To provide expert clinical leadership and specialist nursing care for children and young people with haemoglobinopathies, delivering high-quality, evidence-based care whilst leading service development, education, research and quality improvement across the patient pathway.
The successful candidate will be responsible for leading, managing, and developing a specialist haemoglobinopathy service, ensuring the delivery of high-quality, evidence-based, clinically effective care and an excellent patient and family experience.
To provide strategic direction, clinical leadership, and expert guidance to support the continuous development of the service and improvement of patient outcomes. To lead the development of clinical standards, workforce capability, and service improvement initiatives, supporting the advancement of haemoglobinopathy care locally, regionally, and nationally where appropriate.
Working collaboratively with medical, nursing, allied health professional, community, and wider healthcare teams, the post holder will directly and indirectly influence all aspects of care for children with haemoglobinopathies.
Closing date of applications: 20th October 2026
Interview date: 3rd November 2026
- Provide specialist assessment, planning, implementation and evaluation of care for children and young people with haemoglobinopathies and their families
- Act as key point of contact, delivering expert advice, support and education to patients, families and healthcare professionals
- Manage a specialist caseload autonomously, referrals, undertaking advanced clinical assessment and escalating concerns appropriately
- Support delivery of annual reviews, investigations, treatment monitoring and multidisciplinary care planning
- Participate in MDT meetings, clinics and regional haemoglobinopathy networks
- Lead neonatal haemoglobinopathy screening follow-up service, providing counselling and support to families of affected infants and carriers
- Communicate complex sensitive information compassionately
- Support medicines optimisation and treatment adherence
- Develop and implement evidence-based clinical pathways, guidelines and standards of care
- Work with multidisciplinary teams and external agencies
- Contribute to clinical audit, quality improvement, research service development initiatives in line with national standards and best practice
- Act as a clinical expert, resource for staff within the speciality
- Provide education, training and support to healthcare professionals, patients, families
- Maintain professional competence
- Lead and participate in audit, governance, research, quality improvement
- Support service redesign, policy development and implementation of national and local guidance
As a trusted organisation at the heart of our communities, we recognise the important role we can play in supporting the public, patients, our own people and local partners in achieving the best of health for the local population and the communities in which they live by providing Exceptional Care Together
Our fundamental Values of Compassion, Openness and Excellence underpin how we intend to work as a Trust and the associated behaviours are becoming embedded in all aspects of how we work.
In Return We Will Offer
- Development opportunities, both professional and leadership development
- On-going support from recruitment to when you join our team and beyond.
- Staff benefits including employee assistance programme, discounted gym membership, onsite fitness classes, car schemes
Key Facts
- We see on average 4810 OP appointments a day.
- We are the 4th busiest Trauma & Orthopaedic outpatients department in England – an average of 2077 per week.
- An average of 1115 patients are seen in A&Es across our network every day – 3rd largest in the country.
- Our hospitals admit an average of 195 emergency patients daily.
- Last year we undertook almost 33,700 planned surgical operations in our 57 operating theatres.
- We are one of only 7 Trusts nationally with more than 50 operating theatres.
- We carry out more than 140 elective procedures each working day.
- UHDB is a research active University Hospital with a large and varied portfolio of clinical trials and research opportunities for all staff.
For further details / informal visits contact: Name: Gemma Kenny Job title: Paediatric Matron – Planned Care Email address: gemma.kenny@nhs.net Telephone number: 01332 785426
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